Upcoming Events

Skirboll Family Autism Conference 2024
Oct
16
to Oct 18

Skirboll Family Autism Conference 2024

  • Strong Center for Developmental Disabilities (map)
  • Google Calendar ICS

Save the Dates

October 16–18, 2024

Inclusive Care, Inclusive Living: Support Across the Life Course

Hosted virtually by the Division of Developmental and Behavioral Pediatrics and Strong Center for Developmental Disabilities.

Opening Session: October 16, 2:00–5:00 p.m.: Navigating Healthcare and Disability Systems

Session 2: October 17, 9:30 a.m.–12:30 p.m.: Future Planning and Supporting Independence

Session 3: October 18, 10:00 a.m.–12:00 p.m.: Understanding Lived Experiences

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Legislation Advocacy 401
Oct
16

Legislation Advocacy 401

  • C4SD - an initiative of Families for Disabilities Rights, Inc. (map)
  • Google Calendar ICS

Legislation Advocacy 401 training: For both beginners and long-time advocates, a more advanced course that focuses on: timelines, how we can help shape policies, and maximizing our impact to drive real legislative change for the DD community.
Wednesday October 16th at 7 PM.

Pre-register athttps://us02web.zoom.us/meeting/register/tZItceGgrTMsH9JKSa2F_smU0VHljL7rMYCw

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Executive Committee meeting (every 2 weeks)
Oct
18

Executive Committee meeting (every 2 weeks)

  • C4SD - an initiative of Families for Disabilities Rights, Inc. (map)
  • Google Calendar ICS

Meeting of the chairs of the various working groups— Housing, Employment, Education, etc.
This meeting currently occurs every two weeks. Participation limited to chair-persons.
Use “Your SD Priorities” to let us know if you wish to participate in one of the working groups.

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Programs for All-Inclusive Care for the Elderly (PACE) and the I/DD Population
Oct
23

Programs for All-Inclusive Care for the Elderly (PACE) and the I/DD Population

The Coalition for Whole Person Supports is offering two additional webinars on models for improving whole person supports. Please find details and link to register below.

Free event but you must register via Eventbrite to receive an invite.

Webinar 1: Programs for All-inclusive Care for the Elderly (PACE) and the I/DD Population
Presenter: Scott LaRue, CEO of Archcare
Date/Time: Wednesday, October 23rd, from 1-2pm ET
Click Here to Register

(Please note: CWPS might be a sincere attempt to restructure, or it might be an attempt to disguise Managed Care. Either way, it is worth staying aware of what is going on with this emerging astroturfing group.)

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Executive Committee meeting (every 2 weeks)
Nov
1

Executive Committee meeting (every 2 weeks)

  • C4SD - an initiative of Families for Disabilities Rights, Inc. (map)
  • Google Calendar ICS

Meeting of the chairs of the various working groups— Housing, Employment, Education, etc.
This meeting currently occurs every two weeks. Participation limited to chair-persons.
Use “Your SD Priorities” to let us know if you wish to participate in one of the working groups.

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Specialized I/DD Plans-Provider Led (SIP-PL)
Nov
6

Specialized I/DD Plans-Provider Led (SIP-PL)

Webinar 2: Specialized I/DD Plans - Provider Led (SIP-PL)
Presenter: Brett Friedman, former NYS Medicaid Director and current Partner at Ropes & Gray
Date/Time: Wednesday, November 6th, from 1-2pm
Click Here to Register

Free event but you must register via Eventbrite (link above) to receive an invite.

Previous recordings of educational sessions on different models that seek to more holistically support people with I/DD can be found here.

(Please note: CWPS might be a sincere attempt to restructure, or it might be an attempt to disguise Managed Care. Either way, it is worth staying aware of what is going on with this emerging astroturfing group.)



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MISCC Meeting
Dec
11

MISCC Meeting

  • The Most Integrated Setting Coordinating Council (MISCC) (map)
  • Google Calendar ICS

Most Integrated Setting Coordinating Council, run by Kim Hill, the Chief Disability Officer.
An opportunity to hear what the State is doing to ensure access to services, for all special populations, including Developmental Disabilities.
And, an opportunity to weigh in during public comment about what obstacles we are encountering.
Current MISCC policy is to let anyone speak during public comments.

Pre-registration is recommended, use link below. And, during the time a meeting is in progress, it is possible to register and join.

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Family Employment Awareness Training
Oct
10
to Oct 11

Family Employment Awareness Training

  • Queens Special Needs Program of the Chinese-American Planning Council (map)
  • Google Calendar ICS

The Queens Special Needs Program of the

Chinese-American Planning Council is offering a

special 2-day training called Family Employment

Awareness Training (FEAT). This training is

designed for parents, families, and individuals

with disabilities (age: 14+). The training will be in

English and lunch will be provided.

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Executive Committee meeting (every 2 weeks)
Oct
4

Executive Committee meeting (every 2 weeks)

  • C4SD - an initiative of Families for Disabilities Rights, Inc. (map)
  • Google Calendar ICS

Meeting of the chairs of the various working groups— Housing, Employment, Education, etc.
This meeting currently occurs every two weeks. Participation limited to chair-persons.
Use “Your SD Priorities” to let us know if you wish to participate in one of the working groups.

View Event →
Legislation Advocacy 101
Sep
27

Legislation Advocacy 101

  • C4SD - an initiative of Families for Disabilities Rights, Inc. (map)
  • Google Calendar ICS

Legislative Advocacy 101 session

Friday September 27th, from 12 PM to 1 PM

Learn how to talk to your Local Legislators to convey the challenges that families with disabilities face and how they can help.

Registration to the Zoom meeting required,

Please use this link to register:

https://us02web.zoom.us/meeting/register/tZUqd-2qpjMqHdAlRAklCt3OulKOoJqONkdG

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Executive Committee meeting (every 2 weeks)
Sep
20

Executive Committee meeting (every 2 weeks)

  • C4SD - an initiative of Families for Disabilities Rights, Inc. (map)
  • Google Calendar ICS

Meeting of the chairs of the various working groups— Housing, Employment, Education, etc.
This meeting currently occurs every two weeks. Participation limited to chair-persons.
Use “Your SD Priorities” to let us know if you wish to participate in one of the working groups.

View Event →
TownHall: Coordinated Assessment System
Sep
18

TownHall: Coordinated Assessment System

Update on September 16. Message from NYC FAIR:
We regret to inform you that the NYC FAIR TOWN HALL ABOUT THE CAS scheduled is cancelled.

What: NYC FAIR TownHall on the Coordinated Assessment System
When: Wednesday, Sept 18 from 7pm to 8:30pm

How: Register with this link: forms.gle/Fzmc5xoqmbRvLdgG9
Who: Parent moderaters, Albert Pruett of OPWDD.

Why: The Federal government requires that NYS assess everyone getting services from OPWDD. How will we know that they are doing a good job of assessing? What are the options if they don't?
Mr. Pruett is the Director, Bureau of Assessment Oversight and Coordination for the Office for People With Developmental Disabilities

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MISCC Meeting
Sep
11

MISCC Meeting

Most Integrated Setting Coordinating Council, run by Kim Hill, the Chief Disability Officer.
An opportunity to hear what the State is doing to ensure access to services, for all special populations, including Developmental Disabilities.
And, an opportunity to weigh in during public comment about what obstacles we are encountering.
Current MISCC policy is to let anyone speak during public comments.

Pre-registration is recommended, use link below. And, during the time a meeting is in progress, it is possible to register and join.

View Event →
Executive Committee meeting (every 2 weeks)
Sep
6

Executive Committee meeting (every 2 weeks)

  • C4SD - an initiative of Families for Disabilities Rights, Inc. (map)
  • Google Calendar ICS

Meeting of the chairs of the various working groups— Housing, Employment, Education, etc.
This meeting currently occurs every two weeks. Participation limited to chair-persons.
Use “Your SD Priorities” to let us know if you wish to participate in one of the working groups.

View Event →
Executive Committee meeting (every 2 weeks)
Aug
23

Executive Committee meeting (every 2 weeks)

  • C4SD - an initiative of Families for Disabilities Rights, Inc. (map)
  • Google Calendar ICS

Meeting of the chairs of the various working groups— Housing, Employment, Education, etc.
This meeting currently occurs every two weeks. Participation limited to chair-persons.
Use “Your SD Priorities” to let us know if you wish to participate in one of the working groups.

View Event →
August C4SD TownHall- Evening edition
Aug
22

August C4SD TownHall- Evening edition

Hear about the successes and challenges of our young coalition.
Talk about what should happen next.

Nighttime Edition Zoom Meeting @ 7pm

Time: Aug 22, 2024 07:00 PM Eastern Time (US and Canada)

Join Zoom Meeting

https://us06web.zoom.us/j/82168359809?pwd=N95fO5FhvDyHkCKZJA6pWD8mrraATQ.1

Meeting ID: 821 6835 9809

Passcode: 837910

There will be two sessions, on August 21st at 12pm and on 22nd at 7pm.
All are welcome!

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LOCAL LEADERS WORKSHOP ON I/DD HOUSING
Aug
15

LOCAL LEADERS WORKSHOP ON I/DD HOUSING

LOCAL LEADERS WORKSHOP ON I/DD HOUSING

Help create a roadmap to more housing options for people with I/DD in NYS at the Local Leaders Workshop. The results of a comprehensive Housing Analysis consisting of responses from over 500 stakeholders in Rochester will be presented. We will introduce viable housing options, review data, analyze trends, and engage in collaborative discussions.

50 Science Parkway, Rochester, NY 14620

QUESTIONS? Email Heather Burroughs, AutismUp Advocacy

& Education Director, hburroughs@autismup.org

Virtual option available by Zoom Link.

Meeting ID: 865 0938 3764 Passcode: 930354

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Executive Committee meeting (every 2 weeks)
Aug
9

Executive Committee meeting (every 2 weeks)

  • C4SD - an initiative of Families for Disabilities Rights, Inc. (map)
  • Google Calendar ICS

Meeting of the chairs of the various working groups— Housing, Employment, Education, etc.
This meeting currently occurs every two weeks. Participation limited to chair-persons.
Use “Your SD Priorities” to let us know if you wish to participate in one of the working groups.

View Event →
Executive Committee meeting (every 2 weeks)
Jul
26

Executive Committee meeting (every 2 weeks)

  • C4SD - an initiative of Families for Disabilities Rights, Inc. (map)
  • Google Calendar ICS

Meeting of the chairs of the various working groups— Housing, Employment, Education, etc.
This meeting currently occurs every two weeks. Participation limited to chair-persons.
Use “Your SD Priorities” to let us know if you wish to participate in one of the working groups.

View Event →
Executive Committee meeting
Jul
12

Executive Committee meeting

  • C4SD - an initiative of Families for Disabilities Rights, Inc. (map)
  • Google Calendar ICS

Meeting of the chairs of the various working groups— Housing, Employment, Education, etc.
This meeting currently occurs every two weeks. Participation limited to chair-persons.
Use “Your SD Priorities” to let us know if you wish to participate in one of the working groups.

View Event →
OPWDD Strategic Forum- The Bronx!
Jul
9

OPWDD Strategic Forum- The Bronx!

Advocacy Opportunity.

One of six regional forums for OPWDD. Anyone can attend. If you want to submit a question, that must be done one week in advnace. Registration is required, but you can also just show up. You can even ask to testify at the last minute.

However, to submit questions you must pre-register by July 2nd. Registration link in English.
From here you can get access to registrations in other languages.

For ideas about questions to submit, look at coalition4sdf.org/testify

View Event →
Executive Committee meeting
Jun
28

Executive Committee meeting

  • C4SD - an initiative of Families for Disabilities Rights, Inc. (map)
  • Google Calendar ICS

Meeting of the chairs of the various working groups— Housing, Employment, Education, etc.
This meeting currently occurs every two weeks. Participation limited to chair-persons.
Use “Your SD Priorities” to let us know if you wish to participate in one of the working groups.

View Event →
C4SD TownHall- Daytime edition
Jun
20

C4SD TownHall- Daytime edition

Hear about the successes and challenges of our young coalition. Tell us what you think should happen next.

On Zoom, registration link available soon. If you would like to receive the link, please email emocas@richmanlawpolicy.com

There will be two sessions, on June 20th at 12pm and at 7pm.
All are welcome!

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OPWDD Strategic Forum- New City
Jun
18

OPWDD Strategic Forum- New City

Advocacy Opportunity.

One of six regional forums for OPWDD. Anyone can attend. If you want to submit a question, that must be done one week in advnace. Registration is required, but you can also just show up. You can even ask to testify at the last minute.

However, pre-registration is required to submit questions. Registration link in English.
From here you can get access to registrations in other languages.

For ideas about questions to submit, look at coalition4sdf.org/testify

View Event →
MISCC meeting
Jun
12

MISCC meeting

Advocacy Opportunity.

Meeting of New York State’s official Most Integrated Setting Coordinating Council. MISCC.
These meetings are the closest to dialogue of any of the New York State meeting. Anyone can attend, anyone can ask to testify— current practice is that you can even submit questions on the day of the meeting, whether in person or remote. Registration is required, but even that can happen at the last minute— even during the meeting! Registration link.

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June 11
Jun
11

June 11

Wine & Cheese Fundraiser for C4SD

At SNACK, 316 E 53rd Street.
All are welcome! Please RSVP by 6/7 to emocas@richmanlawpolicy.com

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DDAC Meeting
Jun
11

DDAC Meeting

Advocacy Opportunity.

Developmental Disabilities Advisory Council Meeting.
Can attend by webex, or go in. person to Albany or one of four “satellite” locations around the state.

Open meeting, pre-registration is required.
Mostly a meeting to listen to— there is limited opportunity for public input at the DDAC sessions. The policy has been that public comments are deferred until the end, & are not responded to.

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OPWDD Strategic Forum- Rochester
Jun
3

OPWDD Strategic Forum- Rochester

Advocacy Opportunity.

One of six regional forums for OPWDD. Anyone can attend. If you want to submit a question, that must be done one week in advnace. Registration is required, but you can also just show up. You can even ask to testify at the last minute.

However, pre-registration is required to submit questions. Registration link in English.
From here you can get access to registrations in other languages.

For ideas about questions to submit, look at coalition4sdf.org/testify

View Event →